tag:blogger.com,1999:blog-3332148950440973470.comments2023-09-25T13:26:55.076-03:00Highway to HellPaul Mhttp://www.blogger.com/profile/06565655297378711212noreply@blogger.comBlogger55125tag:blogger.com,1999:blog-3332148950440973470.post-86111999555861583742014-03-27T17:23:34.785-03:002014-03-27T17:23:34.785-03:00Hi Paul,
Healthline just designed a virtual guide...Hi Paul,<br /><br />Healthline just designed a virtual guide of the effects of chemotherapy on the body. You can see the infographic here: http://www.healthline.com/health/cancer/effects-on-body<br /><br />This is valuable med-reviewed information that can help a person understand the side effects they are experiencing from their chemo treatment. I thought this would be of interest to your audience, and I’m writing to see if you would include this as a resource on your page: http://highwaytohellwithmyeloma.blogspot.com/<br /><br />If you do not believe this would be a good fit for a resource on your site, even sharing this on your social communities would be a great alternative to help get the word out.<br /><br />Thanks so much for taking the time to review. Please let me know your thoughts and if I can answer any questions for you.<br /><br />All the best,<br />Maggie Danhakl • Assistant Marketing Manager<br />p: 415-281-3124 f: 415-281-3199<br /> <br />Healthline • The Power of Intelligent Health<br />660 Third Street, San Francisco, CA 94107 <br />www.healthline.com | @Healthline | @HealthlineCorp<br /> <br />About Us: corp.healthline.commaggie.danhakl@healthline.comnoreply@blogger.comtag:blogger.com,1999:blog-3332148950440973470.post-341140549850077302012-10-16T10:54:42.928-03:002012-10-16T10:54:42.928-03:00Hi Paul,
I apologize for posting this on your bl...Hi Paul, <br /><br />I apologize for posting this on your blog, I just didn’t know how else to contact you! My name is Linda and I’m the production assistant for an online health community called (www.wegohealth.com ). I came across your blogwhile doing some research into the online Blood Cancer community. I was so impressed with the great resource you have created for the greater Blood Cancer community.<br /><br />Just wanted to drop you a quick note because we recently launched a new video platform called WEGOHealth.tv and are in the process of building a Blood Cancer Channel featuring the advice, information and wisdom of Health Activists like yourself. I think you would be an excellent addition to the channel and I would love to chat with you about possibly creating a video with us!<br /><br />Please check out our site; http://tv.wegohealth.com/ and get back to me at your convenience if you have any interest.<br /><br />I know this note is a little out of the blue and I understand if it’s not something you would be interested in, but I didn’t want you to miss out on the opportunity.<br /><br />Thanks,<br /><br />Linda<br />Production Assistant<br />WEGO Health<br />Lindam@wegohealth.com<br />linda manhttp://www.wegohealth.comnoreply@blogger.comtag:blogger.com,1999:blog-3332148950440973470.post-12566276382294596732012-04-14T11:40:47.994-03:002012-04-14T11:40:47.994-03:00Oh gosh. I am sorry to hear about your marriage en...Oh gosh. I am sorry to hear about your marriage ending. I guess this happens quite a bit when relationships are thrown into crisis mode. Best wishes moving forward.tim's wifehttps://www.blogger.com/profile/08605449376728668764noreply@blogger.comtag:blogger.com,1999:blog-3332148950440973470.post-49924266050348665102012-04-02T08:09:00.405-03:002012-04-02T08:09:00.405-03:00That looks terribly painful.That looks terribly painful.thalidomide birth defectshttp://www.onlinelawyersource.com/birth-defects/thalidomide/noreply@blogger.comtag:blogger.com,1999:blog-3332148950440973470.post-73190909247527620082012-04-02T08:07:45.789-03:002012-04-02T08:07:45.789-03:00Well,thanks for sharing that with us.Well,thanks for sharing that with us.thalidomide birth defectshttp://www.onlinelawyersource.com/birth-defects/thalidomide/noreply@blogger.comtag:blogger.com,1999:blog-3332148950440973470.post-35542466464442158342012-04-02T08:06:16.315-03:002012-04-02T08:06:16.315-03:00I guess we'll just have to wait and see.I guess we'll just have to wait and see.thalidomide birth defectshttp://www.onlinelawyersource.com/birth-defects/thalidomide/noreply@blogger.comtag:blogger.com,1999:blog-3332148950440973470.post-39761166377320914842011-09-20T05:41:51.646-03:002011-09-20T05:41:51.646-03:00Nice Blog...visionarychallenge.comNice Blog...visionarychallenge.comvisionhttp://visionarychallenge.comnoreply@blogger.comtag:blogger.com,1999:blog-3332148950440973470.post-90281334765524499902011-03-16T11:19:46.573-03:002011-03-16T11:19:46.573-03:00Fingers crossed that the results bring good news!Fingers crossed that the results bring good news!Mhttps://www.blogger.com/profile/15800153451645970774noreply@blogger.comtag:blogger.com,1999:blog-3332148950440973470.post-75154180607030443452011-01-07T09:44:20.657-04:002011-01-07T09:44:20.657-04:00I wouldn’t get too concerned about one beta 2 micr...I wouldn’t get too concerned about one beta 2 microglobulin test being high. There are several things that can make this level increase. My wife’s oncologist has only had this test done once. We don’t use it as an indicator. The protein number seems to be a better early warning indicator. If that goes up then maybe do the PET/CT scan next. The BMB can be hit and miss since it only checks the spot where the big needle bores through the bone.Jerryhttps://www.blogger.com/profile/08334002321240267987noreply@blogger.comtag:blogger.com,1999:blog-3332148950440973470.post-16524385765087862982010-12-07T16:02:05.658-04:002010-12-07T16:02:05.658-04:00Now that we are more than two years out, I have ha...Now that we are more than two years out, I have had conversations with other living MMers and we have this thing where we say the reason its hard to find MM survivors is because they are out living their lives! As well they should be. But like you, I wonder about Jason from time to time and hope and pray that he is being a wise young man, enjoying his life and moving on!<br /><br />I've continued blogging more publicly now about my views as a caregiver. www.loripuente.com.<br /><br />I hope all is well with you.<br /><br />LoriLori Puentehttps://www.blogger.com/profile/11304096696996620733noreply@blogger.comtag:blogger.com,1999:blog-3332148950440973470.post-23996594804385155832010-06-30T16:52:41.480-03:002010-06-30T16:52:41.480-03:00Have a great vacation, it all sounds wonderful.Have a great vacation, it all sounds wonderful.Susie Hemingwayhttps://www.blogger.com/profile/00936508273837230613noreply@blogger.comtag:blogger.com,1999:blog-3332148950440973470.post-18113448356264891302010-06-27T21:59:58.010-03:002010-06-27T21:59:58.010-03:00Thanks, Char! Just checked the Muse/Edge video - v...Thanks, Char! Just checked the Muse/Edge video - very nice!Paul Mhttps://www.blogger.com/profile/06565655297378711212noreply@blogger.comtag:blogger.com,1999:blog-3332148950440973470.post-59857692943996775352010-06-27T17:31:59.086-03:002010-06-27T17:31:59.086-03:00Hope you have an awesome time, if you get the chan...Hope you have an awesome time, if you get the chance try to check out the video of The Edge on stage with Muse at Glastonbury festival! V cool! Best wishes!Charnoreply@blogger.comtag:blogger.com,1999:blog-3332148950440973470.post-75676219897143435912010-05-26T09:48:51.553-03:002010-05-26T09:48:51.553-03:00Hi Jerry, and thanks. I'll ask about my number...Hi Jerry, and thanks. I'll ask about my numbers tomorrow and take things from there. Will post more after the appointment. Waiting game now.Paul Mhttps://www.blogger.com/profile/06565655297378711212noreply@blogger.comtag:blogger.com,1999:blog-3332148950440973470.post-34996384069197796482010-05-26T09:01:55.018-03:002010-05-26T09:01:55.018-03:00If your other blood tests are normal I would not t...If your other blood tests are normal I would not think they could determine your myeloma is in progression. This is assuming no increase in monoclonal protein or the free light chain test. Ask your doctor if there are other things than can cause your beta-2 microglobulin to go up. I think there are.Jerryhttps://www.blogger.com/profile/08334002321240267987noreply@blogger.comtag:blogger.com,1999:blog-3332148950440973470.post-9893727529567386852010-04-24T22:23:26.258-03:002010-04-24T22:23:26.258-03:00Thanks very much to you both!Thanks very much to you both!Anonymoushttps://www.blogger.com/profile/12208985533540425036noreply@blogger.comtag:blogger.com,1999:blog-3332148950440973470.post-86117870528392336222010-04-22T17:21:58.217-03:002010-04-22T17:21:58.217-03:00Happy anniversary wishing you many many more years...Happy anniversary wishing you many many more years - we are almost four years down the line and diagnosed at stage 111. There is much that can be achieved even when the odds are stacked against you.<br />Keep well and happy and dont think about it too much once your medications are on board. You will do very well for sure, with such an early diagnosis. All best wishes.Susie Hemingwayhttps://www.blogger.com/profile/00936508273837230613noreply@blogger.comtag:blogger.com,1999:blog-3332148950440973470.post-67992239464871718542010-04-21T16:40:11.002-03:002010-04-21T16:40:11.002-03:00Congratulations! I hope you get another 40 annive...Congratulations! I hope you get another 40 anniversaries.Mhttps://www.blogger.com/profile/15800153451645970774noreply@blogger.comtag:blogger.com,1999:blog-3332148950440973470.post-81601834273663673232010-04-18T20:46:22.224-03:002010-04-18T20:46:22.224-03:00We made no secret about it when Tim was dx'ed....We made no secret about it when Tim was dx'ed. Now, I wish I had told people not to tell their kids. Some chose not to. Others did and we had some kids look at my husband with real fear when they first heard. We did not hide if from our daughter as her school nurse warned me she would hear it first on the playground then and we thought she<br />was not young enough to hide it from. Now I do fear this news becoming a scary rumor around her<br />new school making kids avoid her but<br />the lid doesn't go back on. Since kids aren't your issue, then it comes down really to your personality. It is hard sometimes when all people have to say to you is "how are you feeling?" and Tim and I do<br />not want pity. BUT Tim has been shown such love and support from so<br />many people, it has surely touched<br />him. I don't think he regrets it being out there at all. He even understands when folks say the most<br />ridiculous things sometimes. He has been truly bowled over at times by the support. He does not advertise it with his customers but sometimes they do find out and they have always been great sometimes sharing their own cancer battles with him<br />and always wishing him well.<br />3 years later, people are a lot more normal with us now. It's not on their minds so much and Tim does<br />not look sick. They don't feel the need to always bring it up every time they see us which I am glad about. Best wishes from Jersey.tim's wifehttps://www.blogger.com/profile/08605449376728668764noreply@blogger.comtag:blogger.com,1999:blog-3332148950440973470.post-55466825521168925742010-04-07T16:38:39.166-03:002010-04-07T16:38:39.166-03:00Good Luck whatever you choose, it was an easy choi...Good Luck whatever you choose, it was an easy choice for my husband who had just retired and our two boys were settled and would not be affected by anything we decided to do, so we thought it best to let everyone know. I talk about it openly on Facebook and on my two blogs, I need support too and this is a great way to discuss and find out more about MM. My husband is now entering his forth year being diagnosed at stage 111.<br /><br />Sincerely wishing you well with whatever you choose<br />Susie Hemingway MoursiSusie Hemingwayhttps://www.blogger.com/profile/00936508273837230613noreply@blogger.comtag:blogger.com,1999:blog-3332148950440973470.post-37848873588378504482010-04-06T16:32:24.833-03:002010-04-06T16:32:24.833-03:00Thanks to you both. First, I want to be clear that...Thanks to you both. First, I want to be clear that I am not seeking attention or coddling. Part of me does want to bring awareness to MM, and I also want to celebrate living a years with MM, whether I "go public" or not. So far friends and co-workers approach me with the occasional "how are you feeling" comments, to which I respond "just fine". However, when my MM develops and I need to start treatment, my changing responses might change their ease in talking about the health topic - but that's just a guess. <br /><br />Since my initial sharing with a few close friends and family, several people have found out about my health. I've told a few more people, always choosing carefully.<br /><br />Sandy, in my case I do not have kids, and I have already shared the news with my employer. I have been assured getting sick will not affect my job standing in the main organization - and of that I am very confident. I am not fearful of any negative impact, short of people treating me differently or feeling uncomfortable in an "elephant in the room" kind of way. <br /><br />I will post something on my facebook status to celebrate my 1-year anniversary, but it will be kind of cryptic... something my friends who already know about my health will understand (my status updates are often rather out there, so to speak, so this will not be anything unusual). That said, if more people find out so be it. I'm not looking to advertise my health issue, but won't deny it either. <br /><br />Thanks to you both, and to those who have sent me private messages.Paul Mhttps://www.blogger.com/profile/06565655297378711212noreply@blogger.comtag:blogger.com,1999:blog-3332148950440973470.post-26600706464539142392010-04-06T16:19:34.796-03:002010-04-06T16:19:34.796-03:00That's a tough one. With my dad's diagnosi...That's a tough one. With my dad's diagnosis, it was hard for my folks to <i>not</i> come out publicly, since he was diagnosed in the late stages of multiple myeloma. Basically, between the hospital visits and the changes in his physical appearance, it was obvious that something was up. Although it made it easier for my mother to be able to lean on some for emotional support, I think that the hardest thing for my parents upon others' finding out was that 1) from that point on, it seemed to be the main conversation topic brought up by nearly anyone who approached her (i.e. even some who would have otherwise never previously offered up much other than a casual 'hello' were now asking her about my dad all the time, which was sometimes exhausting for her), and 2) there were some people in their lives who simply didn't know what to do with the information and who suddenly just walked out of their lives--cut off contact altogether, rather than have to deal with any awkwardness they may have felt having a friend with cancer. I'm not sure that the second point would really be a sound reason to refrain from going public with your diagnosis, but the first one is something you'll need to consider for yourself, as well as for your loved ones who will find themselves perpetually approached and asked for updates.Mhttps://www.blogger.com/profile/15800153451645970774noreply@blogger.comtag:blogger.com,1999:blog-3332148950440973470.post-17235293376928627322010-04-01T18:41:44.407-03:002010-04-01T18:41:44.407-03:00Because the relative who has MM also has a thrivin...Because the relative who has MM also has a thriving business, it was not beneficial to let news about the dx out into the public. However, over time the news has gradually come out and the business continues to progress.<br />My opinion, after some years in public relations, is that it all depends on how the news might affect you, your business endeavors, your family, and especially children. My greatest concern is that in today's climate, small children do not understand what is going on although they clearly get the message that things are not as they used to be. If you suspect that "big news" will be converted to gossip which will negatively affect them, then perhaps it is wise to wait. Gossip, like feathers out of a pillow, cannot be easily controlled.... and the message can be distorted.Sandyhttps://www.blogger.com/profile/02265922352726668243noreply@blogger.comtag:blogger.com,1999:blog-3332148950440973470.post-20802410767395520982010-03-28T09:42:42.335-03:002010-03-28T09:42:42.335-03:00Oh - I just updated the post with a link to the ep...Oh - I just updated the post with a link to the episode.Paul Mhttps://www.blogger.com/profile/06565655297378711212noreply@blogger.comtag:blogger.com,1999:blog-3332148950440973470.post-82834330462228116732010-03-28T09:42:07.226-03:002010-03-28T09:42:07.226-03:00It was good, informative and also infuriating. Gre...It was good, informative and also infuriating. Great job of presenting the outrageous pricing and inaccessibility of some MM drugs.Paul Mhttps://www.blogger.com/profile/06565655297378711212noreply@blogger.com