Saturday, March 31, 2012

Miracle Drug? Dare we hope?

One of my favourite tech sites, Gizmodo posted about a "miracle drug" that targets any cancerous tumour cells for all types of cancer. It works by blocking a protein called CD47 which tells the immune system not to kill healthy blood cells. Cancer cells also use this protein to trick the immune system and stop it from attacking them. Ah, you sneaky cancer cells. For more info, check the story here. The sites also posts several cancer updates, which you can check out here. Great for some cutting edge news on cancer treatments.

On a personal note, April 16th, 2012 marks the 3rd anniversary of my official multiple myeloma diagnosis. It continues to be stable at stage I, and I have yet to need treatment. The bimonthly blood tests and yearly skeletal surveys continue. My doctor decided to skip the bone marrow biopsy this year. I'm not complaining.

My life has take a sharp turn in recent months, with my dear wife leaving our marriage. I miss her every day, but I cannot say this was unexpected. I know I was the best husband I knew how to be, but there are times when shit happens. That pretty much sums things up. Here's to moving forward.

Monday, March 28, 2011

Excellent Blog Resource - Myeloma Beacon

A good friend of mine shared this link. The Myeloma Beacon blog is a source for breaking, independent news about multiple myeloma, including latest treatments, advice for families, a discussion forum and more. A must for anyone interested in the disease. Thanks M!

I am still waiting for news of my latest bone marrow biopsy. Will post when I hear more.

Tuesday, March 15, 2011

Biopsy Day

I just came home from another bone marrow biopsy, my second so far. Luckily (if that can be said in such a situation), mine was taken through the sternum and not the pelvis. It was more uncomfortable than painful, but the affected site is pretty sore. My doctor mentioned the magic percentage used to determine if you have MM has lowered from 15% to 10%. Two years ago, I was at 15%. In two weeks I'll know more, but my doctor thinks I may just need continued monitoring with bimonthly blood tests. Oh, by the way, that is not me in the photo, and I did not even flinch this time. The aspiration part of the procedure, while unpleasant, was quite tolerable.

It's amazing how one's perspective can change after being diagnosed with MM. I know I can stress easily, but this time around, wandering thoughts on the days leading to the biopsy (and all of the questions about future steps that come with it) did not bother me very much. I tend to enjoy each day and have not been thinking too far ahead, apart from a summer trip to NYC with my wife. Hopefully I can postpone or tolerate treatment enough to still go, since we've already booked our flights. Proof that I have not lost my optimism. I've even renewed my subscription to MacLife for another 2 years.

To close this post, my thoughts are with the thousands of people who are suffering in Japan. My cancer is nothing compared to what they are going through.


Friday, January 7, 2011

Uh oh

Seems I may have been premature in taking a break from the blog. My beta-2 microglobulin levels are up slightly, in the "you might need to start treatment" range. Oncology appointment next week after a rushed blood tests and a (scheduled) skeletal survey. Will post more in when get new info. At the very least, this will probably mean another bone marrow biopsy and possible chemo/stem cell consult. In the meantime, feel free to make loud noises and wake me up form this bad dream. Thanks.

Tuesday, December 21, 2010

Been a long time

Well hello! I know I haven't posted in about 6 months. Truth is, my cancer's been stable since April 2009, and I got a little tired of updating with another "hey, last test results were fine" posts. I've also been a bit too busy living, with work, my marriage and more. Thought I would post this message to let you all know I'm ok, in good spirits and health, and ready to celebrate Christmas 2010.

Since my last post, my wife and I went to Vegas and had a ball. Saw shows, sights, gambled a bit (lost about $40 between us), ate great food and enjoyed that excess that is Vegas. I recommend Cirque du Soleil's Ka, the Crazy Horse burlesque show and the fountains and the Bellagio, among many other things. Due to the heat and lack of sleep, we skipped the drive in the desert, but that's for next time. Oh, did I mention the Crazy Horse show?

I wish all of you a very Merry Christmas and a Happy New Year! I leave you with this gem of a mash-up - a Star Wars Christmas. Enjoy.

Sunday, June 27, 2010

Vegas, baby!

Haven't posted in a while - things have been hectic with work, but my health as been stable. Just about to leave for a great vacation to Quebec City, Toronto and Las Vegas. Vegas has been on my bucket list for a while now. I am very interested in experiencing the city's energy and "over the top" everything. My wife has been busy planning the trip (it's her thing) and we have a fun schedule with time for some nothing. We had been hoping to see U2 in Toronto, but the tour was postponed due to Bono's injury. Perhaps the band will give a free concert next year. You know, pro Bono. *cough* On the agenda? Cirque du Soleil's Ka, Penn & Teller, Crazy Horse Paris, a drive to Hoover Dam and Red Rock Canyon and more. I will post a few pics later!

Thursday, May 27, 2010

Human Error... Whew!

Had my (rushed) oncology appointment this morning. Seems the call I received from the Quebec hospital about the SCT (stem cell treatment) was due to a clerical error. Several myeloma patients were called and unnecessarily worried, but this is a minor human error.

This did give me an opportunity to discuss my latest results, and my myloma remains indolent and very stable. There were a few fluctuations with some numbers so additional tests may be ordered as a precaution, but overall, this is a huge relief.